Why we need a new social contract for data in healthcare
With advances in data collection, information technology and data science in the 21st century, the prospects of targeted disease prevention and precision healthcare have become a reality ...
Jennifer E. Miller, PhD, is an Assistant Professor in Yale School of Medicine and Founder of Bioethics International, a nonprofit dedicated to advancing ethics and patient-centricity in healthcare innovation. She is also the Founder of the Good Pharma Scorecard, an index that ranks new drugs and pharmaceutical companies on their ethics performance, as well as the Human Data Ethics Lab. Prior to joining Yale’s faculty, Dr. Miller was based at NYU, Harvard, and Duke.
Committed to public service, Dr. Miller has served on NYU’s Pharmacy and Therapeutics Committee and Stem Cell Research IRB, the J&J-NYU Compassionate-Use Advisory Committee (monitor), the Center for Disease Control and Prevention’s (CDC) Task Force for Pediatric Emergency Mass Critical Care, the American Medical Association’s (AMA) Advanced Disaster Life Support Education Consortium, as a consultant to the United Nations Economic and Social Council, and on the PCORI-NIH Collaboratory.
A prolific writer, Dr. Miller has authored over 40 publications, including for Nature Medicine, Health Affairs, the Hastings Center Report, and The Scientist. She was a Fox News pundit from 2009 to 2012 and remains a commentator for print, radio and television news media, frequently featured on CBS news, Wall Street Journal, Washington Post, Bloomberg News, Forbes, and NPR.
Dr. Miller’s current work explores the ethics, transparency and governance of how medicines, biologics, and technologies are researched, developed, marketed, priced, and made accessible to patients globally. She also specializes in the ethics of big data, AI and machine learning.