Global Health

A rare disease stopped this woman from standing until she was 15 - and now she’s working to help others

Lynsey Chediak

Lynsey Chediak, the World Economic Forum’s Project Lead on Precision Medicine & Rare Diseases, was born with a rare condition called arthrogryposis. Image: Lynsey Chediak

Sean Fleming
Senior Writer, Formative Content
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Lynsey was diagnosed with arthrogryposis aged 5 and has had multiple operations, enabling her to walk. Image: Lynsey Chediak
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The prevalence of some of the more common rare diseases. Image: Visual Capitalist
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